Epilepsy & Infantile Spasms?!!?

Well after a 72 hour stay in the hospital we've finally gotten a diagnosis.. as of now Preston's diagnosis is EPILEPSY & pre INFANTILE SPASMS. We found out hes actually having full blown seizures in his sleep- which was hard for me to understand bc I watch him sleep all the time & he never has what most people would assume is a seizure. Yes he jumps a few times but that is all....except according to his brain pattern hes definitely have seizures. Now, this doesnt mean its full blown spastic movements where he's jerking uncontrollably, these are just very subtle & occur during sleep. If he wouldnt have had an EEG, we wouldve never known.

As far as the Infantile Spasms is concerened he these arent full blown & the doctor is trying to get meds to control them before they get to that point. The spasms he's having during the day arent showing any abnormal brain activity..which is GOOD. because infantile spasms can become a very devastating disease.

I am remaining very positive through this all & am receiving such great support through friends and family & it really makes a difference. Its all in Gods hands and I know God will continue to bless me. He has a plan for me & He will give me the strength to pull through it all.

Preston is such an AMAZING baby & such a trooper- he never even cried one time after being hooked up to the EEG after 48 hours. I love my baby boy & will do ANYTHING in this world to get him healthy.

I just wanted to give everyone a quick update & thanks for everything....the support & the thoughts and prayers have really helped keep my spirits up.



God is good & he answered my prayers. I wanted to know what was going on with my baby boy...we're one step closer to get him healthy. I love the Lord!

*Update*

See how AWFUL of a "blogger" I am?! I dont know why I am even TRYING to do this!!!??

We have been SO busy the past week or so. Preston and I BOTH had the FLU!! Thankfully Jon didnt get it!! I think God was really looking out for me bc he knew I couldnt handle Jon being sick. he's SUCH a baby :)

I signed Preston up for MORE therapy. & we started our first session of Physical therapy today & it went well! Everyone I have met has been so pleasant & up beat to be around.. it really helps when you're dealing with such a touchy & emotional subject. I mean who doesnt want their child to walk, crawl, sit up & develop at the "NORMAL" speed?! I've also learned there is no NORMAL. my baby is absolute PERFECTION & I couldnt imagine my life without him. he is my world.

Thursday we have P's 24hr video EEG at Childrens in Birmingham...not looking forward to that AT ALL bc he is going to be so incredibly UNHAPPY! Praying for positive news & MAYBE we can actually get some answers.

...in other news...

We took Preston, Sarah & Evan (Niece & Nephew) to the pumpkin patch this weekend & had a good time. its nice to be able to relax and do something other than work and doctors visits. I live for the weekends :)

oooh AND I got my car back! guess how much the total damage was???

SERIOUSLY?!

I was SO wrong at thinking Preston just had a cold! My poor child has the FLU! this past year has been such a rollercoaster ride. I know God has a plan for us and He's only going to give me all I can handle but I so desperately NEED A BREAK.


Praying for SOME sort of good news soon.....

sick wittle boy

I love my child SO much..he is the CUTEST most PERFECT boy in the world...BUT- this morning he made me SICK to my stomach....

Normally my gag reflexes are pretty good...I never have a problem with diapers- I laugh at Jon bc hes always gagging- this morning it wasnt a diaper that got me.

dun dun dun....SNOT!

On very RARE occasions will it bother me. this morning was one of them- poor P is SO sick ( & has a doctors appointment today) but we're on the way to dads in the car & he sneezes and it goes EVERYWHERE all over his face, outfit, etc. I looked back to check out the damage and my eyes watered and i gagged. it was AWFUL..

Snotty nose yesterday afternoon.

P is supposed to have a 1 year well check up today but OF COURSE he's sick so itll be a sick visit too. which means NO shots & Ill have to take off again to take him to get shots.

Hope the doc is prepared for me today bc i have oh so many questions for her. I want a diagnosis for my child. I want to know what is going on. No more wait at see & we'll watch it. He's obviously not your "average" one year old so what is it?! Tired of not knowing...A diagnosis will help us to know & understand what needs to be worked on & what special treatments & therapies he needs. We've been playing the guessing game since he was 3 months. lets figure this out!

...In other news::: I got pictures of my car. Supposedly I will have it back in 2 weeks as good as new. HMMM I find that very hard to believe. We will see.

First time for everything....

Yes, I am going to actually attempt to BLOG!

Along with my new attempt @ being crafty AND couponing...lets see how many things I can keep up with on my list. Do I enjoy being stressed and overwhelmed?

.....I think so...

speaking of being crafty...check out my homemade wreath & decorations for our front door..

I feel like we did good, even though hubby kept saying he wasnt in a "festive" mood.

Weekend in a nutshell...

Preston's first birthday & MAJOR wreck in the same day. no pics of wreck yet but look how cute my little man is :)